Long-QT Syndrome At Work

I got an interesting e-mail from a construction site manager today. She hired a young worker suffering from long-QT syndrome and asked for advice. Not only did the construction firm provide an automated external defibrillator (AED), but the manager also took a first aid course. 

I call that commendable and hope more companies follow that example.

Of course, it is also up to long-QT syndrome patients to make sure they have proper treatment and are followed by a specialist.

Since I have a defibrillator implanted, AEDs at my home or at my workplace are less an issue. My bosses and colleagues are informed about my disease though and know I have an ICD. 

They support me in every way and understand that there are some consequences. For instance, I have my follow-ups on a Thursday afternoon every sixth month. This means I have to leave work earlier.

I am interested in your experiences. Please leave me your comments.